Since he came to the world, he has faced challenges. And he always does it with a smile. Harper foy He is six years old and, according to medical records, is one of 20 people in the United States with harlequin ichthyosis, a rare disease that causes your skin to grow ten times faster than normal.
When the little girl was born, the professionals gave her only a 50 percent chance of survival. Today, she is a happy girl, who loves to sing, dance and pose in front of the camera.
A story of overcoming
Harper was born with harlequin ichthyosis, an incredibly rare genetic condition that occurs in only 1 in 500,000 newborns.
Harper Foy was born with harlequin ichthyosis, a rare genetic condition. Photo: PA Real Life
This condition causes a thick skin, dry, fish-scale, generalized and persistent. As it is renewed very frequently, it has to shower four times a day to soothe itching and pain. It is that it is always reddened by the constant detachment.
Thus, since school began in 2021, the little girl bathes an hour before entering classes. During lunchtime, they’ll pick her up for a second shower. The third is given when he returns from school, and the last one before going to bed.
However, Angie Foy (44), her mother, who is an employee of a real estate agency in Edmonds, Washington, assures that the disease has not stopped her. Quite the opposite.
Harper was now able to start school and had no trouble integrating with his group. Photo: Elke Van de Velde
«There was a time when we were worried that she would never be able to go to school,» the woman told the newspaper. Subway. «There are other people with her condition that we know are homeschooled, so the fact that Harper was able to start this year is a miracle for us,» he explained.
Due to her cheerful and outgoing way of being, the girl did not have the slightest problem to make friends and integrate into the peer group.
«Harper has such a beautiful sense of humor and personality that you can’t help but love her when you meet her. She has a unique personality, a special sense of fun,» said her mom.
To be a model, a dream come true
The family signed a two-year contract with a modeling agency just before the coronavirus pandemic, but sadly, due to the situation, she was unable to work at the time.
Luckily, in these days when the world is already returning to normal, Harper has already filmed his first modeling campaign. «We can’t reveal too much as it hasn’t been released yet, but we can’t wait to see her face on billboards,» Angie said.
Harper’s commercial will be seen early next year. Photo: Elke Van de Velde
Due to his condition, Harper could not comb his hair or put on makeup as models usually do, but that did not prevent him from giving everything in his work, highlights the medium.
«Her skin and scalp are too sensitive to do her hair and makeup, but they had loud music and she danced around the room«described the mother.
The commercial will run early next year and the girl is very excited – and eager – to see him.
«Harper will always be different from other people and his skin will always need special care and attention, but we’ll cross every bridge as we get to it«, concludes his mother.